Community Content

Chronic blood transfusion therapy use remained low over 8-year periodThe use of pharmaceutical disease-modifying therapies (pDMTs) has increased in recent years…

AbstractBackground/Objectives: Blood transfusion is a crucial component in the treatment of individuals with sickle cell disease [SCD]; nonetheless, multiple…

Sickle cell disease is an inherited disorder that affects the body’s red blood cells. People with this disease produce a different version of haemoglobin — the…

The Haemoglobinopathy Coordinating Centre (HCC) for the North of England is thrilled to invite you to our rescheduled Sickle Cell Patient Event!After having to…

Having a remote job has been a game-changer for me as someone with sickle cell disease. I’m better able to manage my health — no rushed mornings, cold commutes, or…

A community of 150 patients, caregivers, supporters and volunteers recently joined the Children’s Hospital at Montefiore Einstein (CHAM) for its Pediatric Sickle…

One by one, they took the mic — not as hospital patients, but as poets. Their words carried stories of pain, strength and identity, transforming a hospital space…

Since 1988, the Minnesota Newborn Screening Program at MDH has been instrumental in identifying children born with sickle cell disease (SCD). The program also…

Sickle cell disease is a genetic blood disorder that affects the shape and function of red blood cells. In this condition, red blood cells become rigid and crescent…

For people living with sickle cell disease, hope is often measured in small victories; a month without a pain crisis, fewer nights spent in emergency…