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Carmani Boozer is more than just the son of a former NBA All-Star — his life story represents one of the most remarkable intersections of family, medical science,…

A blood test measuring levels of the protein cystatin C may provide a more reliable way to monitor for kidney problems in children and young adults with sickle cell…

Children with sickle cell disease (SCD) are about seven times more likely to have asthma than their unaffected siblings, with odds increasing with age, according to…

As they shift from pediatric to adult care, young adults with sickle cell disease (SCD) appear to visit the emergency room more often and be prescribed less…

Vertex executives warned that Casgevy, its curative treatment for sickle cell disease, would be slow to reach patients. But few expected it to be this slow.More…

Colleen Kelly, Attending Physician and Pediatric Hematologist/Oncologist at Dana-Farber Cancer Institute and Boston Children’s Hospital, shared a post on LinkedIn…

Each summer, MedCamps of Louisiana welcomes hundreds of children living with chronic illnesses and disabilities to Camp Alabama in Choudrant, where they discover…

One of the hardest things about growing up with sickle cell disease wasn’t the pain. It was the limitations — not just those imposed by the condition itself, but…

What began as a season of devastating complications, uncertainty, and hopelessness unexpectedly became the pathway to purpose and career diversification for me.…

How could I have been through the first trimester without realizing it?Years ago, I mistook a pulmonary embolism for what I thought was a minor sickle cell disease…