Community Stories
Apr 15, 2026
Sickle cell disease affects about 100,000 people in the United States and millions worldwide.It's a genetic condition that changes the shape of red blood cells from…
Apr 07, 2026
KAMPALA AND KAYUNGA, UGANDA—Olivia Nansamba sits on a narrow hospital bed, her 6-month-old son in her arms, her young daughter nestled beside her. She traveled two…
Apr 01, 2026
NEW YORK, NY, UNITED STATES, April 1, 2026 /EINPresswire.com/ — As headlines out of New York City report promising breakthroughs in the search for a sickle cell…
Mar 27, 2026
With 2025 in my rearview mirror and 2026 ahead of me, I’ve found myself reflecting deeply on the past year. Living with sickle cell disease has never been easy, but…
Mar 24, 2026
MDHHS develops 6 strategic goals to help those with Sickle Cell Disease in Michigan. Other stories from today include a proposed data center in Detroit, another No…
Feb 18, 2026
Black History Month offers an opportunity to honour the resilience, leadership, and lived experiences of Black people and their communities.Judy Grandison is a…
Feb 16, 2026
One of my most important takeaways from therapy is the idea of building a body of evidence — proof that things can go well, and that my fears don’t always predict…
Feb 07, 2026
Emotional testimony from South Florida patient highlights why lawmakers advanced a bill requiring physician education on sickle cell careIn many ways, Shamar Harper…
Feb 02, 2026
I like to believe that having sickle cell doesn’t at all limit my potential. If I really want to do something, then I can. However, I have to say I have always…
Jan 26, 2026
I recently had the first-ever MRI scan of my brain, not something I ever expected.Getting an MRI came up during one of my routine sickle cell disease checkups,…