Community Center
Apr 13, 2026
Having a remote job has been a game-changer for me as someone with sickle cell disease. I’m better able to manage my health — no rushed mornings, cold commutes, or…
Apr 13, 2026
A community of 150 patients, caregivers, supporters and volunteers recently joined the Children’s Hospital at Montefiore Einstein (CHAM) for its Pediatric Sickle…
Apr 13, 2026
One by one, they took the mic — not as hospital patients, but as poets. Their words carried stories of pain, strength and identity, transforming a hospital space…
Apr 13, 2026
16-year-old Precious Clark has been a patient at the DanceBlue Golisano Children’s at UK Hematology/Oncology Clinic since she was diagnosed with sickle cell anemia…
Apr 10, 2026
Since 1988, the Minnesota Newborn Screening Program at MDH has been instrumental in identifying children born with sickle cell disease (SCD). The program also…
Apr 10, 2026
Let’s talk Sickle Cell Anemia. Learn more about this impactful illness with @urnaacp and @richmondbsa
Apr 10, 2026
One of the reasons to speak out about our sickle cell experiences,It is because our stories of sickle cell experiences can confirm what others are experiencing.
Apr 09, 2026
My name is Zainab. I’m 27 years old. An SS.That is, I live with sickle cell disease.My parents are both AS.Oh, they They knew.They were told.They still married.They…
Apr 09, 2026
“Sickle cell is close to my heart, having impacted my family and my own life as a carrier of the trait. Growing up, I didn’t see enough awareness about the…
Apr 07, 2026
Today is World Health Day. Sickle cell disease affects millions of people across the world. Internationally, 300,000+ babies are born with sickle cell disease each…