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Sickle cell disease (SCD) is one of the most common inherited blood disorders in the United States, disproportionately affecting Black Americans. And yet, despite its prevalence and severity, it continues to be underfunded, under-researched, and too often misunderstood.
According to the U.S. Department of Health and Human Services Office of Minority Health, sickle cell disease affects approximately one in 365 Black or African American births, making it a significant public health issue within the community. But numbers alone don’t capture the full story.