Sickle cell disease care is unevenly distributed across regions in New York State

Sickle cell disease (SCD) is the most common inherited blood disorder in the United States. Approximately 10 percent of people with SCD in the US live in New York State, with the majority residing in New York City. 

A new study led by researchers at NYU School of Global Public Health finds that SCD care is unevenly distributed across regions in New York State. New York City has the largest proportion of hospitalizations and Long Island has the highest charges for care, but hospital stays are longer in other areas with less access to specialized care, according to the study published in JAMA Network Open.