UPCOMING SESSIONS in ET
Tue, Sep 1, 2026
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Understanding Your Care Journey: From Testing to Treatment Brian L. Miller II Click Here To Register
UPCOMING SESSIONS in ET
Tue, Sep 1, 2026 · 5:00 – 6:00 AM Bangkok
Understanding Your Care Journey: From Testing to Treatment
Brian L. Miller II
Click Here To Register
View all sessions

Living with sickle cell disease

Details

My name is Zainab. I’m 27 years old. An SS.

That is, I live with sickle cell disease.

My parents are both AS.

Oh, they They knew.

They were told.

They still married.

They said God approved it. They said love would be enough. They said faith would cover the consequences.

I am the consequence.

I was diagnosed before I was two. My childhood memories are not playgrounds or cartoons,they are; hospitals, needles, and adults whispering when they thought I couldn’t hear.