Source
The Times Of India
Bengaluru: For nearly a decade, a girl with sickle cell disease was taken to hospitals only during painful emergencies while her family avoided regular treatment for the inherited condition. By the time she consulted a specialist at the age of 10, delayed care left her with a massively enlarged spleen, severe pain and gallstones, eventually requiring surgery to remove both her spleen and gallbladder. Today, at 21, as her family searches for a groom, the same stigma has resurfaced in the form of a new dilemma — whether to disclose her diagnosis to prospective in-laws.
The case is far from isolated and reflects the deep-rooted stigma surrounding this inherited blood disorder, doctors say.
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