UPCOMING SESSIONS in ET
Tue, Sep 1, 2026
5:00 – 6:00 AM Bangkok
Understanding Your Care Journey: From Testing to Treatment Brian L. Miller II Click Here To Register
UPCOMING SESSIONS in ET
Tue, Sep 1, 2026 · 5:00 – 6:00 AM Bangkok
Understanding Your Care Journey: From Testing to Treatment
Brian L. Miller II
Click Here To Register
View all sessions

The Guilt of Being Cared For: Unlearning Childhood Shame as a Sickle Cell Advocate

Sickle Cell Anemia

One thing I've always been deeply aware of, even as a child, is the emotional toll sickle cell can place not just on me but on those who care for me. Back then, I didn't have the language to explain it, but I felt it deeply. It was a kind of hyper-awareness, an emotional weight I carried silently. I knew that whenever I fell ill, whenever a crisis hit, it didn't just affect me. It affected everyone around me, especially my mom.