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How did the diagnosis come about? Initial signs/symptoms? When did you notice the initial symptoms?The initial symptoms were pain in the hands, rise in bilirubin…
For Akuku Danger, the decision was not born out of a dislike for children. In fact, he says he loves them. It was a deeply personal choice informed by a lifetime of…
KNOXVILLE, Tenn. (WATE) — For nearly his entire life, 17-year-old Eric Macklin has lived with the most severe form of sickle cell disease.His mother, Ereka Persley…
A Louisiana man has become the first person in the state to be declared functionally cured of sickle cell disease after receiving the gene-editing therapy Casgevy,…
The Sickle Cell Disease Association of America Inc. (SCDAA), a national nonprofit membership organization that advocates for people affected by sickle cell disease…
Jimi Olaghere completed a patient-in-residence fellowship at gene therapy company NV Therapeutics at the Bakar Labs incubator at the University of California,…
HHMI Investigator Stuart Orkin honored for research that paved the way for new treatments for sickle cell disease and debilitating blood disorders affecting…
A woman who has spent nearly her entire life in the grip of sickle cell disease has opened up about the relentless pain that has shaped every part of her world.…
A Nigerian lady has shared her experience of living with sickle cell disease while celebrating her graduation milestone She opened up about repeated health crises…
A mother who was diagnosed with sickle cell disease at just two months old has been cured of the condition after undergoing an "experimental" treatment at Johns…