Community Center

According to the Oxford English Dictionary, quality of life (QoL) is a measurement of the standard of health, comfort, and happiness experienced by an individual or…

Christelle was diagnosed with sickle cell disease before her first birthday. Daily pain, hospital visits, and going to school while unwell shaped much of her…

As the new year begins, I’ve been reflecting deeply on all that happened in 2025. Living with sickle cell disease has never been easy, but last year marked a…

Ayana JohnsonA lot of people definitely see only the televised version of pageantry. 'Toddlers and Tiaras.' You know, it's shown as such a competitive world where…

Rae BlaylarkRae is the mother of a young adult living with Sickle Cell Disease (SCD). Her son, now 23 years old, was diagnosed at two weeks of age through newborn…

Taking care of someone with sickle cell disease (SCD) can be both rewarding and challenging. There may be many things to remember to keep your loved one healthy,…

Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease (SS) and I'm the…

I must prioritize my health so that I have the tools to manage other things in lifeAfter completing my finals and passing my clinical comprehensive exam last week,…

This type of sickle cell crisis tests both physical and emotional strengthRecently, I doubted I’d be able to write this column. My knees had become swollen,…

Rare in Australia but devastating in impact, sickle cell disease is reshaping the lives of children and their families – bringing chronic pain, cultural stigma, and…