Community Center

It has been quite some time since I was last here. For that, I owe you an apology. The silence, though sudden, was necessary. The past few months have been among…

At St. John XXIII Hospital Aber, every child’s journey reminds us of the power of courage, hope, and attentive care. Ocira Edmond, a six-year-old boy from Adebe…

After months of feeling well, the sudden onset of a crisis was frustrating.If you’ve read my recent columns, you’ll know I’ve been in a really good place with my…

Mapillar Dahn-Flemister describes raising children with sickle cell disease like walking on eggshells. "You just never know when there could be a pain crisis…

Dr. Stephan Biheng, growing up in Cameroon, would be struck with bouts of intense, bone-crushing pain.A “pain crisis,” they call it.When Biheng speaks of these…

A 12-year-old is the first patient in the state to receive a new form of gene therapy.By Maureen Gilmer, Riley Children’s Health senior writer, mgilmer1@iuhealth.…

The Sickle Cell Data Collection program reported maternal death rates in California (2004–2014) of 629 per 100,000 for Black women with SCD, 12 per 100,000 for…

Seventeen-year-old Sani’Yah Johnson and her 7-year-old little sister, Rah’Niyah, have a lot in common. As Sani’Yah hones her skills as a hair stylist, Rah’Niyah…

Richard Fletcher participates in martial arts like Wu and Krav Maga to cope with the pain associated with sickle cell disease. One of four children, he lost his…

Kyriako Damavoletes has HbS beta thalassemia. This means he received a HbS gene from one parent and a beta thalassemia gene from the other.Both Damavoletes and his…