UPCOMING SESSIONS in ET
Tue, Sep 1, 2026
5:00 – 6:00 AM Bangkok
Understanding Your Care Journey: From Testing to Treatment Brian L. Miller II Click Here To Register
UPCOMING SESSIONS in ET
Tue, Sep 1, 2026 · 5:00 – 6:00 AM Bangkok
Understanding Your Care Journey: From Testing to Treatment
Brian L. Miller II
Click Here To Register
View all sessions

My Family’s Journey with Sickle Cell Disease

Sickle Cell Anemia

By Marissa Chow, American Red Cross volunteer

It’s sobering when you’re admitted to the hospital so often that the nurses know you by name. They look at you with a mixture of compassion and pity, saying “Oh no, you’re back again?” or “I remember you. I’ve known you since you were a baby!” And they don’t just know your name; they know you. As a sickle cell patient, they know your need for a blood transfusion is urgent and that your tiny veins tend to collapse, making blood draws difficult and painful. They know that the intense stabbing pain racking your body, a dangerously low hemoglobin level, and a high fever can result in your condition progressing from serious to critical very fast. They know that every hour that passes without a blood transfusion increases your risk of infection, life-threatening respiratory difficulties, organ damage, and stroke. They know that once you get new blood in your veins, you’ll perk up and return to your normal self; that you hate the weird clown guy who comes around trying to make you laugh but welcome the friendly and comforting therapy dogs; that the only way to get you out of bed is to challenge you to a game of foosball. The hospital has been your second home since infancy; the nurses just know you.