Patient Stories

With 2025 in my rearview mirror and 2026 ahead of me, I’ve found myself reflecting deeply on the past year. Living with sickle cell disease has never been easy, but…

I like to believe that having sickle cell doesn’t at all limit my potential. If I really want to do something, then I can. However, I have to say I have always…

As the new year begins, I’ve been reflecting deeply on all that happened in 2025. Living with sickle cell disease has never been easy, but last year marked a…

Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease (SS) and I'm the…

I must prioritize my health so that I have the tools to manage other things in lifeAfter completing my finals and passing my clinical comprehensive exam last week,…

This type of sickle cell crisis tests both physical and emotional strengthRecently, I doubted I’d be able to write this column. My knees had become swollen,…

Rare in Australia but devastating in impact, sickle cell disease is reshaping the lives of children and their families – bringing chronic pain, cultural stigma, and…

It has been quite some time since I was last here. For that, I owe you an apology. The silence, though sudden, was necessary. The past few months have been among…

At St. John XXIII Hospital Aber, every child’s journey reminds us of the power of courage, hope, and attentive care. Ocira Edmond, a six-year-old boy from Adebe…

After months of feeling well, the sudden onset of a crisis was frustrating.If you’ve read my recent columns, you’ll know I’ve been in a really good place with my…