Patient Stories

With 2025 in my rearview mirror and 2026 ahead of me, I’ve found myself reflecting deeply on the past year. Living with sickle cell disease has never been easy, but…

I like to believe that having sickle cell doesn’t at all limit my potential. If I really want to do something, then I can. However, I have to say I have always…

As the new year begins, I’ve been reflecting deeply on all that happened in 2025. Living with sickle cell disease has never been easy, but last year marked a…

Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease (SS) and I'm the…

Seventeen-year-old Sani’Yah Johnson and her 7-year-old little sister, Rah’Niyah, have a lot in common. As Sani’Yah hones her skills as a hair stylist, Rah’Niyah…

Richard Fletcher participates in martial arts like Wu and Krav Maga to cope with the pain associated with sickle cell disease. One of four children, he lost his…

Kyriako Damavoletes has HbS beta thalassemia. This means he received a HbS gene from one parent and a beta thalassemia gene from the other.Both Damavoletes and his…

Julian Cann uses writing and similar activities to relieve stress and deal with the pain of sickle cell disease.He’s a young, up-and-coming rapper who performs and…

Stephon Fisher is a normal guy. He works, he hangs out with friends, he enjoys time with his family, he plans for a healthy future. And this type of existence is…

When Desmond was born, his mother called him the “glass baby.”“He was so small and so delicate,” she recalls, “that when he swelled, he looked like his skin would…