For E’Shon guy, frequent and spontaneous medical crises meant spending birthdays in the hospital, missing school regularly and needing emergency care more than two dozen times throughout his childhood.
The 12-year-old recently took his story to Washington, D.C., sharing with lawmakers how specialized treatment transformed his life with sickle cell disease.
E’Shon and his parents spoke with members of Congress about the challenges of growing up with the chronic condition and how a procedure at University of Michigan Health C.S. Mott Children’s Hospital helped him regain a more normal childhood.
“It’s important to keep kids healthy and make sure they get the best medical care,” E’Shon said.