For some superheroes, invisibility is a superpower. But for Lorin, a “superwoman” single mom of three, one of her powers is making an often “invisible” disease visible.
“You have to fight for what’s best for your kids because most people don’t understand, especially because my kids have a condition they can’t see,” she said. “They just see me wiping off the swings at the playground and think I’m some hyperactive new mom.”
Lorin has two children, Nairobi and Obe, with sickle cell disease. Sickle cell disease causes red blood cells to become hard, sticky, and C-shaped, instead of round. This makes it difficult for red blood cells to move freely throughout the body.