Rare in Australia but devastating in impact, sickle cell disease is reshaping the lives of children and their families – bringing chronic pain, cultural stigma, and a fight for understanding into the spotlight.
Just imagine getting a call at midnight that your little girl is sick and has lost the ability to walk.
This was the beginning of Betsy’s nightmare after her five-year-old daughter Sarah went to her aunt’s house for a sleepover.
After the alarm was raised, Betsy says it was a terrifying night for her and her family.