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UPCOMING SESSIONS in ET
Tue, Sep 1, 2026 · 5:00 – 6:00 AM Bangkok
Understanding Your Care Journey: From Testing to Treatment
Brian L. Miller II
Click Here To Register
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Why I refused to stay silent about my sickle cell disease

sickle cell anemia
Source
Sickle Cell Anemia News

“Why do you have to write about your health on social media?”

My brother asked me that question many years ago in our family WhatsApp group after I started openly discussing my sickle cell disease (SCD) online.

At the time, I understood his concern. Many families still associate SCD with stigma, silence, and shame. Public conversations about chronic illness often make people uncomfortable, especially in African communities where privacy around health conditions is deeply rooted. Still, I could not remain silent.