What is it like for Elizabeth, living with sickle cell disease?
“Elizabeth’s sickle cell means she has to stay warm. We try to avoid her getting infections, and we go to lots of medical appointments. Because of this, everything we do as a family is mostly indoors, especially in winter.
“Elizabeth can become tired easily, but sometimes she is desperate to play with her friends or stay outside for longer. It is hard, because I want to see her happy but she also needs to be healthy and staying outside in the cold or running around too much can send her into crisis. I do everything I can to keep her and Testimony, her brother, happy inside, so we do lots of painting, crafts and games together.”