Community Stories

For many people living with sickle cell disease (SCD), going to the emergency room isn’t just about getting relief—it’s about bracing yourself. Bracing for the wait…

What is it like for Elizabeth, living with sickle cell disease?“Elizabeth’s sickle cell means she has to stay warm. We try to avoid her getting infections, and we…

From the day he was born, Gary Burks has been coping with the pain and complications that come with sickle cell disease.At age 4, Gary had a stroke, which occurs in…

By Marissa Chow, American Red Cross volunteerIt’s sobering when you’re admitted to the hospital so often that the nurses know you by name. They look at you with a…

I must prioritize my health so that I have the tools to manage other things in lifeAfter completing my finals and passing my clinical comprehensive exam last week,…

This type of sickle cell crisis tests both physical and emotional strengthRecently, I doubted I’d be able to write this column. My knees had become swollen,…

Rare in Australia but devastating in impact, sickle cell disease is reshaping the lives of children and their families – bringing chronic pain, cultural stigma, and…

It has been quite some time since I was last here. For that, I owe you an apology. The silence, though sudden, was necessary. The past few months have been among…

At St. John XXIII Hospital Aber, every child’s journey reminds us of the power of courage, hope, and attentive care. Ocira Edmond, a six-year-old boy from Adebe…

After months of feeling well, the sudden onset of a crisis was frustrating.If you’ve read my recent columns, you’ll know I’ve been in a really good place with my…