Community Stories

Jiraiya Johnson loves sports. Like many seven-year-old girls, Jiraiya wants to play soccer, basketball, and gymnastics.  But not many girls her age get to play…

My sickle cell disease advocacy journey began more than a decade ago, but it has changed shape many times. I have lived through a silent phase, an angry phase, a…

Samuel Idahosa, left, who recently underwent a novel genetic therapy to treat sickle cell disease, is greeted by UCLA men's volleyball assistant head coach Milan…

The quiet, creeping isolation that comes with living with sickle cell disease is a reality we rarely discuss enough.When you live with a moderate to severe form of…

Sickle cell disease affects about 100,000 people in the United States and millions worldwide.It's a genetic condition that changes the shape of red blood cells from…

16-year-old Precious Clark has been a patient at the DanceBlue Golisano Children’s at UK Hematology/Oncology Clinic since she was diagnosed with sickle cell anemia…

KAMPALA AND KAYUNGA, UGANDA—Olivia Nansamba sits on a narrow hospital bed, her 6-month-old son in her arms, her young daughter nestled beside her. She traveled two…

NEW YORK, NY, UNITED STATES, April 1, 2026 /EINPresswire.com/ — As headlines out of New York City report promising breakthroughs in the search for a sickle cell…

With 2025 in my rearview mirror and 2026 ahead of me, I’ve found myself reflecting deeply on the past year. Living with sickle cell disease has never been easy, but…

MDHHS develops 6 strategic goals to help those with Sickle Cell Disease in Michigan. Other stories from today include a proposed data center in Detroit, another No…