Community Center

Why I Started Nike Opalemo Sickle Cell Foundation !I didn’t start this foundation because I read about sickle cell in a book.I started it because I live it.I am a…

Emotional testimony from South Florida patient highlights why lawmakers advanced a bill requiring physician education on sickle cell careIn many ways, Shamar Harper…

Trayson was just 10 days old when he was diagnosed with sickle cell disease. It quickly began shaping his childhood. At a year old, RSV landed him in the hospital.…

I like to believe that having sickle cell doesn’t at all limit my potential. If I really want to do something, then I can. However, I have to say I have always…

I recently had the first-ever MRI scan of my brain, not something I ever expected.Getting an MRI came up during one of my routine sickle cell disease checkups,…

We are excited to invite you to the Sickle Cell & Blood Donation Awareness Conference which will take place on Feb 19th, 2026 at 5PM.This event is the fruit of…

Serenity Cole enjoyed Christmas last month relaxing with her family near her St. Louis home, making crafts and visiting friends.It was a contrast to how Cole, 18,…

According to the Oxford English Dictionary, quality of life (QoL) is a measurement of the standard of health, comfort, and happiness experienced by an individual or…

Christelle was diagnosed with sickle cell disease before her first birthday. Daily pain, hospital visits, and going to school while unwell shaped much of her…

As the new year begins, I’ve been reflecting deeply on all that happened in 2025. Living with sickle cell disease has never been easy, but last year marked a…