Community Center

Ayana JohnsonA lot of people definitely see only the televised version of pageantry. 'Toddlers and Tiaras.' You know, it's shown as such a competitive world where…

Rae BlaylarkRae is the mother of a young adult living with Sickle Cell Disease (SCD). Her son, now 23 years old, was diagnosed at two weeks of age through newborn…

Taking care of someone with sickle cell disease (SCD) can be both rewarding and challenging. There may be many things to remember to keep your loved one healthy,…

Living with sickle cell disease hasn't been easy for me. I'm 24 years of age and I live in Ghana. Since I was born I have had sickle cell disease (SS) and I'm the…

Seventeen-year-old Sani’Yah Johnson and her 7-year-old little sister, Rah’Niyah, have a lot in common. As Sani’Yah hones her skills as a hair stylist, Rah’Niyah…

Richard Fletcher participates in martial arts like Wu and Krav Maga to cope with the pain associated with sickle cell disease. One of four children, he lost his…

Kyriako Damavoletes has HbS beta thalassemia. This means he received a HbS gene from one parent and a beta thalassemia gene from the other.Both Damavoletes and his…

Julian Cann uses writing and similar activities to relieve stress and deal with the pain of sickle cell disease.He’s a young, up-and-coming rapper who performs and…

Registration is NOW OPEN!Join us for the 2026 SCD Policy Forum on March 17-18, 2026 as advocates, community leaders, and policymakers from across the nation come…

Stephon Fisher is a normal guy. He works, he hangs out with friends, he enjoys time with his family, he plans for a healthy future. And this type of existence is…