Community Center

Elijah Dottery, now 10, was diagnosed with sickle cell anemia at birth. His family eventually transferred to U-M for Elijah's care, where he received a bone…

The quiet, creeping isolation that comes with living with sickle cell disease is a reality we rarely discuss enough.When you live with a moderate to severe form of…

The Haemoglobinopathy Coordinating Centre (HCC) for the North of England is thrilled to invite you to our rescheduled Sickle Cell Patient Event!After having to…

Sickle cell disease affects about 100,000 people in the United States and millions worldwide.It's a genetic condition that changes the shape of red blood cells from…

Sickle cell disease is the most common inherited blood disorder worldwide, yet patient experiences vary significantly by region. Data from the Sickle Cell…

Miriam has lived with sickle cell disease, navigating a condition that once threatened to end her life before it truly began. Today, she is not just surviving; she…

Having a remote job has been a game-changer for me as someone with sickle cell disease. I’m better able to manage my health — no rushed mornings, cold commutes, or…

A community of 150 patients, caregivers, supporters and volunteers recently joined the Children’s Hospital at Montefiore Einstein (CHAM) for its Pediatric Sickle…

One by one, they took the mic — not as hospital patients, but as poets. Their words carried stories of pain, strength and identity, transforming a hospital space…

16-year-old Precious Clark has been a patient at the DanceBlue Golisano Children’s at UK Hematology/Oncology Clinic since she was diagnosed with sickle cell anemia…